Cat Eye Syndrome International  NGO

Cat Eye Syndrome International NGO

non profit

Cat Eye Syndrome is a no degenerative genetic anomaly of Chrosomose n° 22 which may lead, at the birth, to an unpredictable scenario of several malformations.

The most common malformations are major cardiac defects such as Total Abnormal Pulmonary Venous Retourn or Fallot Tethralogy, Anal Atresia, eyes with Coloboma also with total loss of sight, ear malformations also with total loss of hearing.

It is possible to have the whole range of malformations as well as not having one. Althought a full list of malformations is not available yet, over 60 ones are already registred as the most common, and 90 % of which must be fixed by surgery in the first days from birth or anyway within the first years of life.

As a consequence, the majority of parents are totally dedicated to their children after birth moving to the hospital with them formonths or years, quitting the job and often the rest of the family.


For this reason, the main goal of Cat Eye Syndrome International (CESI) ngo, an international association founded in Italy, is to support families facing with them all the logistic, moral and financial difficulties due to Syndrome, also because the health care is not everywhere free so not all the families are able to heal and assist their children as they may need.


Cat Eye Syndrome is considered a rare disease, but we think it is not that rare. Real cases we are in touch with, thank to Internet, are already much more than the ones released on medical literature about.

People affected with CES may be everywhere because very often the Syndrome may no have evident pathologic symphtoms, increasing the risk of unaware transmission to the children, which normally will have several malformations also incompatible with life.

For this reason, another goal of the ngo is to set a worldwide screening pre,neo and post-natal in order to:


  • Offer consultancies about the Syndrome that may reassure familes which are expecting a baby with CES, assessing the situation with further specialistic exams and addressing them to the most appropriate hospitals where to garantee the best medical assistance in the first crucial hours of life of their children, reducing the risks of neonatal death or abortion due to fear of the Syndrome and consequentely increasing the life and the choice for life;

  • Encourage prompt cares and therapies;

  • Bring to the public attention of medical educators as well as common persons how common may be this Syndrome and raise awareness about that;

  • Find all over the world the most needy families and bring our help C.

Supporting our projects, You will support all children affected with CES and their families.

Buy our t-shirt to spread awareness about Cat Eye Syndrome , helping to keep always on the smile of these Children.

Or Make a donation on www.cateyesyndrome.info

Thank for your partecipation.


www.cateyesyndrome.international

https://www.facebook.com/cateyesyndromeinternational/

https://twitter.com/cesionlus


A warm thank to "Happy Baby Photography" and Marianna Pavone fort the cooperation and the photografic shooting.

Tanti modi per sostenere Cat Eye Syndrome International NGO

Keep the smile on!

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Keep the smile on!

Wear this t-shirt and spread the smile! You will contribute ... Leggi tutto

Acquista

Altri prodotti:

Keep the smile on!

Wear this t-shirt and spread the smile! You will contribute ... Leggi tutto

Acquista

Altri prodotti:

Keep the smile on!

Wear this t-shirt and spread the smile! You will contribute ... Leggi tutto

Acquista

Altri prodotti: